Association of Parents of Vaccine Damaged Children
78 Campden Road
Shipston-on-Stour
Warwickshire CV36 4DH
(01608) 661595
Advises parents on claiming vaccine damage payment.

Association for Spina Bifida and Hydrocephalus (ASBAH)
ASBAH House
42 Park Road
Peterborough PE1 2UQ
(01733) 555988
www.asbah.org

In Northern Ireland:
Graham House
Knockbracken Healthcare Park
Saintfield Road
Belfast BT8 8BH
(028) 9079 8878

In Wales:
ASBAH in Wales
4 Clys Bedwen
Parc Menai
Bangor
Gwynedd
LL57 4BL
(01248) 671345
Support for parents of children with spina bifida and/or hydrocephalus. Advice, practical and financial help. Local groups.*

The British SPD Support Group
Room 2,
Mont Hamel House
Chapel Place
Ramsgate
Kent CT11 9RY
(01843) 587356
www.spd-uk.org
Provides information and advice about the management of SPD and contact with local experts as well as other women with SPD.

The Cedar Foundation (NI)
1 Upper Lisburn Road
Belfast BT10 0GW
(028) 9062 3382
www.cedar.foundation.org
Offers advice and support to parents of children with cerebral palsy and related motor disorders.

Cleft Lip and Palate Association (CLAPA)
235-237 Finchley Road
London NW3 6LS
(020) 7431 0033
www.clapa.com
Support for families of babies born with cleft lip and/or palate. Feeding equipment available. Local groups.*

Cystic Fibrosis Trust
11 London Road
Bromley BR1 1BY
(020) 8464 7211
www.cftrust.org.uk

In Northern Ireland:
178 Moyola Terrace
Portadown BT62 1BU
(028) 3833 4491

In Wales:
Baltic House
Mount Stuart Square
Cardiff CF10 5FH
(029) 2049 4980
(9am-5pm Mon-Fri)
Information and support for parents of children with cystic fibrosis and for people worried about the possibility of passing on the illness. Local groups.*

Down's Syndrome Association (E & W)
155 Mitcham Road
London SW17 9PG
(020) 8682 4001 (10am-4pm Tues-Thurs)
www.downs-syndrome.org.uk

In Northern Ireland:
Graham House
Knockbracken Healthcare Park
Saintfield Road
Belfast BT8 8BH
(028) 9070 4606

In Wales:
206 Whitchurch Road
Cardiff CF14 3JL
(029) 2052 2511
(9am-12.30pm Mon-Fri)
Information, advice, counselling and support for parents of children with Down's syndrome. Local groups.*

Haemophilia Society
Chesterfield House
385 Euston Road
London NW1 3AU
(020) 7380 0600
(0800) 0186068 (helpline 9am-5pm Mon-Fri)
www.haemophilia.org.uk
Information, advice and practical help for families affected by haemophilia and other bleeding disorders. Some local groups.*

Jennifer Trust for Spinal Muscular Atrophy
Elta House
Birmingham Road
Stratford-upon-Avon CV37 0AQ
(01789) 267520
www.jtsma.org.uk
Self-help group offering information and support to parents of children with the disease. Can put you in touch with other parents. Equipment on loan.*

MENCAP (Royal Society for Mentally Handicapped Children and Adults)
MENCAP National Centre
123 Golden Lane
London EC1Y 0RT
(020) 7454 0454
www.mencap.org.uk

In Northern Ireland:
Segal House
4 Annadale Avenue
Belfast BT7 3JH
(028) 9069 1351

In Wales:
31 Lambourne Crescent
Cardiff Business Park
Llanishen
Cardiff CF14 5GF
(029) 2074 7588
Information, support and advice for parents of children with learning disabilities. Local branches.*

Meningitis Research Foundation
Midland Way
Thornbury
Bristol BS35 2BS
(01454) 281811
080 8800 3344 (24-hour national helpline)
www.meningitis.org

In Northern Ireland:
71 Botanic Avenue
Belfast BT7 1JL
(028) 9032 1283
Provides a support network for families who have been bereaved and help and information to families with someone currently ill or recovering from meningitis and septicaemia.

Meningitis Cymru
149 Hawthorn Way
Brackla
Bridgend CF31 2PG
0800 652 9996 (helpline)
www.meningitiscymru.co.uk
Education, support and information about meningitis for people in Wales.

Muscular Dystrophy Campaign
7-11 Prescott Place
London SW4 6BS
(020) 7720 8055
www.musculardystrophy.org
Support and advice through local branches and a network of Family Care Officers.

In Wales:
Muscular Dystrophy Campaign
Institute of Medical Genetics
University Hospital of Wales
Heath Park
Cardiff CF14 4XW
(029) 2074 4021
Provides support for individuals and families affected by neuromuscular conditions.

Reach (The Association for Children with Hand or Arm Deficiency)
25 High Street
Wellingborough
Northamptonshire
NN8 4JZ
(01933) 274126
www.reach.org.uk
Information and support to parents of children with hand or arm problems. Local groups.*

SENSE (National Deaf-Blind and Rubella Association)
11-13 Clifton Terrace
Finsbury Park
London N4 3SR
(020) 7272 7774
www.sense.org.uk

In Northern Ireland:
The Manor House
51 Mallusk Road
Newtownabbey
BT36 4RU
(028) 9083 3430

In Wales:
Cardiff Sickle Cell and Thalassaemia Centre
Butetown Health Centre
Loudoun Square
Butetown
Cardiff CF10 5UZ
(029) 2047 1055
Information, advice and counselling for families affected by sickle cell disease or trait. Financial help when needed.*

SCOPE
Cerebral Palsy Helpline
P.O. Box 833
Milton Keynes
MK15 5NY
01908 321047
0808 800 3333 (E and W helpline 9am-9pm Mon-Fri, 2pm-6pm weekends)
www.scope.org.uk

In Wales:
SCOPE Cwmpas Cymru
Wales Partnership Area Office
The Wharf
Schooner Way
Cardiff CF10 4EU
(029) 2046 1703
Offers advice and support to parents of children with cerebral palsy.*

Tommy's Campaign
1 Kennington Road
London SE1 7RR
020 7620 0188
www.tommys campaign.org
Information about problems in pregnancy including Toxoplasmosis, Pre-eclampsia, premature birth and miscarriage. Also advice on a healthy pregnancy.*

The UK Thalassaemia Society
19 The Broadway
Southgate Circus
London N14 6PH
(020) 8882 0011
0800 731 1109 (24-hour information line)
www.ukts.org
Information, and advice for families affected by thalassaemia.*